Get the Latest Lupus News from Living with Lupus & Fighting Together.
Are you a Woman with Lupus? Do you have an Unaffected Sister?
The "SisSLE: Sisters of Women with Lupus Research Study" is enrolling blood-related sisters - one sister with a confirmed diagnosis of lupus and one sister who does not have lupus.
The sister with lupus will be asked to answer a one-time health survey and provide a one-time blood sample. The sisters who do not have lupus will be asked to answer a health survey twice-a-year and provide a blood sample once-a-year. The sister's participation is for two years and possibly longer. If you choose to take part in the research study, you can change your mind about your participation at any time.
To join the study or to get more information, please contact the Study Coordinators:
Valerie Ferment 612-626-9038 firstname.lastname@example.org
Patt Carlson 612-626-3736 email@example.com
Healthy? Interested in a study that aims to help treat Rheumatic and Autoimmune Diseases? You can help by joining the GAP Registry!
The Genotype and Phenotype (GAP) Registry is a way for you to help us transform care by donating a blood sample for genetic research purposes. The immune system plays a vital role in maintaining health and protects an individual against disease by identifying and destroying foreign substances such as bacteria and tumor cells. The GAP registry will allow researchers to increase their understanding of how the immune system functions. The Registry is backed through a collaboration between the University of Minnesota Biomarkers Core and the Feinstein Medical Institute in New York City.
To help provide innovative approaches to treating disease! Your blood sample will be used to study the cells that protect us against disease and the genes that control how these cells work. Although you will not receive any personal genetic information from your donation, you may be contributing to the advancement of medical research.
How to Enroll
Participation is easy and takes less than 20 minutes. Individuals who are generally healthy and not currently ill are eligible to participate. Once you join the registry you may be contacted about participation in further studies; however you are under no obligation to participate further.
If you would like to participate or get more information please contact the Study Coordinator:
Valerie Ferment 612-626-9038 or firstname.lastname@example.org
CARRA: The Childhood Arthritis and Rheumatology Research Alliance is an organization of pediatric rheumatologists from across the U.S. and Canada. They have come together to collaborate and conduct high quality clinical research to find the answers to the many questions about childhood rheumatic disease.
They are also creating The CARRA Registry which is a database of patients with pediatric rheumatic diseases. Researchers will study the information that is stored in the database in the hopes of improving future treatments and health outcomes and maybe even preventing or curing pediatric rheumatic diseases in the future. The registry will also help identify patients who may be eligible for future studies.Follow these links for more information on these projects. (links open in new window)
There is currently a family genetic studybeing conducted at the Oklahoma Medical Research Foundation to try and learn more about this devastating disease. From simple blood draws that are done where it is convient for your family researchers hope to:
To learn more about this study follow this link.